Upcoming CMSS & NHC Webinar:

PCORI Engagement Award: Engaging Patients in Clinical Registries

Panel Presentation of Best Practices, Lessons Learned and Strategies to Engage Patients in Clinical Registries

Friday, March 20, 2020
12:30 – 2:00 CDT

Who should listen in?
Medical specialty society and registry staff, patient-group staff and others interested in real-world examples of patient engagement in clinical registries and patient-centered initiatives.

How to participate:
Register for the CMSS & NHC Webinar: Patient Engagement in Clinical Registries on March 20, 2020 12:30 PM CDT.  After registering, you will receive a confirmation email containing information about joining the webinar.

What is this webinar about?
This webinar is intended to explore opportunities for increased patient engagement in specialty society registries, especially through partnerships and collaborations between specialty societies and patient groups. Panelists include CMSS and NHC leadership and representatives from specialty societies, registries and patient organizations who will share respective journeys toward increasing patient engagement.

This webinar was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EA #8565).

Why is this topic important?
Patient and family engagement is increasingly acknowledged as a key component of a complete approach to achieving high quality and affordability in health care.  The patient perspective is important for understanding and interpreting clinical research so that patients, families, and caregivers can be informed members of the healthcare team.  Medical-specialty society registries provide an opportunity for partnership and collaboration with patient groups to ensure registries address questions important to patients, collect data on the outcomes patients care about, and drive meaningful improvement.


  • Reproductive Medicine: Ricardo Azziz, MD, CEO, American Society for Reproductive Medicine; Barbara Collura, President and CEO, RESOLVE: The National Infertility Association; Kevin Doody, MD, Advocacy Representative, Center for Assisted Reproduction, Society for Assisted Reproductive Technology (SART)
  • Orthopaedic Surgery: Nate Glusenkamp, MA, Chief Quality & Registries Officer, American Academy of Orthopaedic Surgeons; Diana Stilwell, Vice Chair, Public Advisory Board, American Academy of Orthopedic Surgeons Registry Program
  • Urology: Marybeth Farquhar, PhD, MSN, RN, EVP of Research, Quality and Scientific Affairs, American Urological Association; Diane Quale, President and co-founder of the Bladder Cancer Advocacy Network (BCAN)
  • Moderator: Helen Burstin, MD, MPH, MACP, EVP & CEO, Council of Medical Specialty Societies

Replays: Webinar: Involving Residents and Fellows in Clinical Registries: ACS Quality In-Training Initiative (QITI)