Long COVID Education, Engagement, and Care Management

Long COVID Education, Engagement, and Care Management is a federally-funded project that seeks to provide multidisciplinary coordination and collaboration across medical societies to improve provider education and engagement in the care of patients with Long COVID.

Caring for people with Long COVID and related conditions presents unique challenges to the healthcare system, including primary and specialty care providers. While information on Long COVID has increased, there is limited coordination in the development and dissemination of clinical guidance across specialties.  

Program Details:  

Over the course of a one-year program, CMSS will engage primary care and specialty societies, advanced practice practitioners, patients, and other stakeholders in a series of coordinated activities to improve education and engagement in the care of people with Long COVID. These activities include:  

  • Empaneling a multidisciplinary Long COVID Expert Panel which will encourage adoption of the National Academies of Sciences, Engineering, and Medicine (NASEM) definition and offer greater specificity, when possible. 
  • Partnering with relevant clinical societies to develop, review, adapt, and disseminate clinical guidance and other educational resources from specialty societies, federal agencies, NASEM, and other high-quality sources on the diagnosis and treatment of Long COVID for both clinicians and the public.  
  • Defining and championing management of Long COVID and related conditions by primary care and other specialists. 

Through cross-specialty collaboration, shared evidence-based information can support coordinated care across primary and specialty care that meets the diverse healthcare needs of patients with Long COVID. 

Because Long COVID is relatively new, many clinicians are unfamiliar with how to diagnose and treat it. Our hope is to better equip primary care providers and other clinicians with the information and tools they need to care for their patients with Long COVID.

– Priti Patel, MD, Senior Advisor for Long COVID 
Centers for Disease Control and Prevention (CDC)

Press Release:

Read the Press Release

Contact:  

Suzanne Pope, MBA, Senior Advisor

Acknowledgement:  

The Long COVID Education, Engagement, and Care Management program is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award to the Council of Medical Specialty Societies (CMSS). The contents are those of the authors and do not necessarily represent the official views of nor endorsement, by CDC/HHS or the U.S. Government.  

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Expert Panel

  • Elizabeth Bast, MD, MPH

    Physician Lead, Long COVID Clinic
    Miami VAMC

  • Jacqueline Becker, PhD

    Neuropsychologist/Assistant Professor of Medicine
    Icahn School of Medicine at Mount Sinai

  • Kelsie Bell, OTR/L

    Occupational Therapist (Clinical Specialist)
    Department of Veterans Affairs

  • Jessica Bender, MD, MPH

    Clinical Assistant Professor
    University of Washington

  • W. Michael Brode, MD, FACP

    Medical Director of Post-COVID-19 Program
    University of Texas at Austin Dell Medical School

  • Abby Cheng, MD, MPHS

    Assistant Professor
    Washington University in St. Louis School of Medicine

  • Lily Chu, MD, MSHS

    Vice President
    International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME)

  • Jay Desai, PhD, MPH

    Epidemiology Program Manager, Long COVID Program
    Minnesota Department of Health

  • Ashley Drapeau, PA-C, L.Ac

    Director, Long COVID Program
    George Washington Center for Integrative Medicine

  • E. Wesley Ely, MD, MPH

    Professor of Medicine and Critical Care
    Vanderbilt University Medical Center & Veteran’s Affairs Tennessee Valley Geriatric Research Education Clinical Center

  • Janna Friedly, MD, MPH

    Professor and Chair, Department of Rehabilitation Medicine
    University of Washington

  • Rachel Gross, MD, MS

    Associate Professor of Pediatrics and Population Health
    NYU Grossman School of Medicine

  • Eric Herman, MD

    Chief Primary Care & Population Health Officer
    Oregon Health & Sciences University

  • Rasika Karnik, MD

    Assistant Professor, Medical Director Post Covid Recovery Clinic
    University of Chicago

  • Michael Mueller, MD

    Assistant Professor of Medicine, Division of General Internal Medicine
    Mayo Clinic Rochester

  • William Niehaus, MD

    Chief Innovation Catalyst for CU PM&R, Outpatient Medical Director of Physical Medicine and Rehabilitation–Anschutz Medical Campus
    University of Colorado Dept of PM&R

  • Yochai Re’em, MD

    Private Practice
    Patient-Led Research Collaborative // NYP-Weill Cornell Medicine

  • Margot Savoy, MD, MPH, FAAFP

    Senior VP, Education, Inclusiveness, Physician Well-Being
    American Academy of Family Physicians

  • Jaime Seltzer, MS

    Scientific Director
    The Myalgic Encephalomyelitis Action Network

  • Michael Sieverts, MPP

    Policy Advisor
    Patient-Led Research Collaborative

  • Matthew Simpson, MD, MPH

    Physician
    Division of Practice Improvement, Center for Evidence and Practice Improvement Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services

  • Geetika Sood, MD, ScM

    Medical Director/Associate Hospital Epidemiologist
    Johns Hopkins University/New York State DOH

  • Melissa Stockwell, MD, MPH

    Chief, Division of Child and Adolescent Health, Dept of Pediatrics
    Columbia University’s Vagelos College of Physicians and Surgeons, Dept of Population and Family Health, Columbia University’s Mailman School of Public Health

  • Alex Truong, MD, MPH

    Assistant Professor of Medicine
    Emory University Hospital

  • Tiffany Walker, MD

    Assistant Professor
    Emory University

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