CHICAGO (May 2, 2018)—The Council of Medical Specialty Societies (CMSS) has been approved for a Eugene Washington PCORI Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI) to support engaging patients in clinical registries.
CMSS Executive Vice President & CEO Helen Burstin, MD, MPH, FACP will lead the engagement project at CMSS. CMSS will collaborate with the National Health Council (NHC), with Eleanor Perfetto, PhD, MS, NHC Senior Vice President of Strategic Initiatives, serving as consultant on the two-year project. The project will focus on developing effective strategies across specialty society clinical registries to engage patients in the selection and use of meaningful patient-centered outcomes and research. In addition to partnership with NHC, a 15-member Engagement Advisory Committee of specialty society leaders, front-line physicians, patient and consumer advocates will serve as advisors during the project’s phases.
“I’m honored to be leading this important work to further incorporate the patient voice into specialty society registries,” says Dr. Burstin. “This PCORI award will allow us to identify promising practices and develop resources for both specialty societies and patients to effectively engage with clinical registries.” This project will launch with a panel focused on patient-reported outcomes and patient engagement at the CMSS Summit on the Future of Clinical Registries on May 10, 2018 in Chicago.
The project is part of a portfolio of projects approved for PCORI funding to help develop a skilled community of patients and other stakeholders from across the entire healthcare enterprise and to involve them meaningfully in every aspect of PCORI’s work.
“This project was selected for Engagement Award funding not only for its commitment to engaging patients and other stakeholders, but also for its potential to increase the usefulness and trustworthiness of the information we produce and facilitate its dissemination and uptake,” said Jean Slutsky, PCORI’s Chief Engagement and Dissemination Officer. “We look forward to following the project’s progress and working with CMSS to share the results.”
The CMSS project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria. For more information about PCORI’s funding to support engagement efforts, visit http://www.pcori.org/content/eugene-washington-pcori-engagement-awards/.
Founded in 1965, the 43 medical specialty society members of CMSS represent 790,000 physician members in the United States. CMSS member societies collaborate to enhance the quality of care delivered in the U.S. healthcare system and to improve the health of the public. CMSS member societies have made significant investments in clinical registries to assess outcomes, benchmark performance, identify best practices, and drive improvement in care.
Founded in 1920, the National Health Council (NHC) is the only organization that brings together all segments of the health community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Made up of more than 100 diverse national health-related organizations and businesses, the NHC’s core membership includes the nation’s leading patient advocacy organizations, which control its governance and policy-making process.
PCORI is an independent, nonprofit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.